Help Us Celebrate Annie's 10th Birthday!

In honor of Annie on her 10th birthday, we are hoping to raise money to support the Aicardi Syndrome Foundation.  We will be collecting tax-deductible donations with checks made payable to the Aicardi Syndrome Foundation.  Donation information is also available online at the Aicardi Syndrome Foundation website to mail a check directly to the Foundation or to make a donation online with a credit card. 

The Aicardi Syndrome Foundation has been an incredible blessing in our lives--connecting us with other families dealing with our same challenges.  We find great strength and comfort by regularly connecting with Aicardi families who are now some of our dearest friends.  We also love attending all the Aicardi Family Conferences where we get to strengthen and support each other in the unique challenges our daughters face.  Donations to the Aicardi Syndrome Foundation help provide funding for these conferences as well as for medical equipment for affected children. Money donated to the Foundation also helps researchers at Baylor University and the University of California at San Francisco conduct medical research into the causes of Aicardi Syndrome and agenesis of the corpus collosum.  Thank you so much for considering a contribution to this Foundation that means so much to our family.

I can't believe Annie is turning 10!  We are celebrating big this year--10 is a HUGE milestone for her!  Before Annie was born, we were told that she had some very serious brain malformations and we were told that if she survived birth, she might only live a few days or months.  We never thought that we would be so fortunate to now be celebrating her 10th birthday!  The past 10 years have brought many emotional and physical challenges, but all of those struggles pale in comparison to the wonderful blessings our family has experienced by having Annie in our family.  She brightens our days and helps us keep a proper perspective in our lives.  She has taught us more than we could have learned any other way.  We are so grateful for her and the sweet spirit she brings into our home.  Our lives would not be the same without her. We love you Annie, and hope you have a fantastic 10th birthday! 


To learn more about Annie and her diagnosis, please read Annie's Story, or her Frequently Asked Questions page.  To learn more about Aicardi Syndrome please visit the Aicardi Syndrome Foundation website.