Knees Good, Seizures Bad

Annie had her post-op follow-up with her orthopedist today.  He was surprised at the foam padding we had to use in order to prevent more pressure sores.  He called our orthotist in to see her, and he was able to get lower profile braces for Annie that should be much more comfortable an easier to work around for dressing and diaper changes.  We still have to use some small pieces of foam for extra padding around some pressure sores, but this is a huge improvement!

The orthopedist was surprised to see all her pressure sores, but said her incisions look great.  He doesn't plan to do any debreeding of her sores, but thinks they will heal on their own as long as absolutely nothing touches them--particularly the one on her heel.

We'll go back in another 2 weeks (at the 4 week mark) to have her sores checked again, and to possibly start learning how to do some very minor controlled bending of Annie's leg.  Then in 4 weeks (at the 6 week mark) we'll go back again and learn how to do more regular physical therapy on her legs, and keep the braces off.

So everything regarding Annie's knees is looking good, but Annie's seizures are still going like crazy despite several doses of Valium, Ativan, and Diastat.  However, now instead of the seizures making her giggle almost all day long, they are making her cry all day and night.  We're back to trying Lortab in case she's having pain that is causing the crying and the seizing, but it doesn't work either.  She's so exhausted but can't get any sleep during the day or night.  She's very much like a very colicky 60 lb newborn baby!  So please keep her in your prayers, that she might make some improvements and finally get to rest her mind and body, without us having to take her back to the hospital!