Annie did finally start voiding on her own and has had a couple small BMs only with the help of a suppository. All the miralax she's getting doesn't seem to be working quite yet. We still anticipate that much more is coming. Her tummy is still a little distended, so hopefully things can get started moving soon and help her feel better.
Annie was in her wheelchair yesterday twice, once for 40 minutes and then later for an hour! That's a lot longer than they anticipated she'd tolerate on the first day. Today so far she's been in her chair for about an hour, but was pretty fussy for a while.
Annie is just on valium for pain. They stopped her celebrex last night and have transitioned her IV valium to oral valium--one more step towards going home. The hospitalist mentioned that she's not receiving any care here that she couldn't get at home, so we think he's suggesting that we could be discharged, but I don't think she's quite ready yet, and it's ultimately up to the orthopedic surgeon anyway, who usually sends his spinal fusion kids home on Saturday or Sunday. We thought Annie might take a little longer since she had a slow go at the beginning of her recovery in the ICU, but since then she's been doing pretty well.
She seems to be mobilizing the retained fluids more today and doesn't appear quite as swollen. We're hoping for those fluids to come off her so her weight can get back to normal. Our biggest concern with having her at home is lifting a 76 lb kid without assistance while trying to be extra gentle with her sore back. But I think her weight will start to drop over the next few days.
The pressure sore on her head developed a blister last night and that blister popped, so her sore doesn't look too great right now, but that's all just part of the healing process.
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| Annie is becoming more alert and awake and seems to be gaining more strength. Today she enjoyed looking at her beads and even got one hand up to play with them just a little bit. |
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