Sunday, December 11, 2016
Lexie's 9th Birthday!
Lexie just turned 9 years old! She had a fun day celebrating with friends with a pizza and movie party.
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All donations are tax-deductable and help fund research, the biennial ASF Family Conferences, and medical equipment for affected children like Annie. Donatations made in honor of Annie and for her benefit are greatly appreciated.
Sheet Music for the Piano and Harp
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Donate to the Aicardi Syndrome Foundation
All donations are tax-deductable and help fund research, the biennial ASF Family Conferences, and medical equipment for affected children like Annie. Donatations made in honor of Annie and for her benefit are greatly appreciated.
Annie's Song of Love
Songs of Love is a non-profit organization that writes personalized songs for critically ill children. Annie received her Song of Love for her 4th birthday on May 24, 2006.
She's With Me
This is a beautiful song by Collin Raye, written about his granddaughter with neurological disabilities. It really touched me since we have our own daughter with Aicardi Syndrome, a severe neurological condition. There aren't many songs out there about children with disabilities and their impact on people's lives, and this one seemed to be just so perfect. I love this song.
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Music by Jodi Ann
Sheet Music for the Piano and Harp
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