Just Waiting...

Today has been a rather uneventful day.  Annie got some Zofran before starting her feeds up again around noon.  She tolerated her feeding well (at a rate of 40cc/hr) until 2:30 when she got her vancomycin.  We're starting to think she just can't tolerate vancomycin anymore for some reason.  We paused her feed for a while then started her back up again and she did just fine the rest of the afternoon until 8:30pm. But this time she threw up BEFORE she got her meds.  We put her current feeding on hold, but we're not sure what the plan is for future feedings at this point.

Annie's swelling is about the same today.  Her blood pressure continues to be good without IV boluses.  She hasn't been as perky today, but she has gotten by on a lot fewer pain meds.  I learned today that I like having her catheterized so I can keep tabs on her urine.  I really liked being able to monitor volume and color yesterday and now with the catheter out I'm curious as to whether she's even urinating at all.  It's so hard to tell when her diapers have so much watery diarrhea.

Molly, Lexie, and Justin stopped by this evening after dinner.  Molly said she really wanted to come to the hospital today.  I don't know if it was to see Annie, me, or just to play with the toys and watch cable TV shows.  Having them here was fun--we haven't been together as a family much so we enjoy the short times we do get.  Molly started crying when it was time for her to go home.  I promised her that tomorrow night (when it's Justin's shift at the hospital) she and I will have a movie party at home--if I can stay awake through a movie!  Lexie seems to be having an easier time than Molly.  My parents will be getting in to town on Sunday, so hopefully that will provide a little more consistency in their days.

I wish I had more good news to report tonight, but this is just going to be a long, slow recovery.  I worry about all sorts of complications that might arise, but then try to remind myself that I just need to take one day, one hour, at a time, and be so incredibly grateful for how well Annie IS doing.  We appreciate everyone's continued prayers for her.  It's comforting to know that so many people are praying and thinking of her.