Sesame Street Saves the Day!

Rather than sending Annie to school today only to have them call me to come pick her up later, I decided to just keep her home today. I thought that maybe after she got her morning vomiting all done with she would be good to go to school late. Instead, she decided to have a fantastic morning, only vomiting up just a small amount of bile once. She watched Sesame Street this morning and giggled through almost the whole hour of it. I'm so grateful for those sweet moments. Her smiles and giggles make me so happy and make all the difficulties so much more bearable.

The afternoon was a little rougher. She saved all her vomiting for during her nap time and while in the car to pick Molly up from school. She has had moments of fussiness today, but no pain like before, thank goodness. We've learned to make sure she gets Lortab at bedtime, and plan to get up with her at least once around 2:00am to give her more Lortab and get her calmed down again. That seems to be working well enough to get us at least a few hours of uninterrupted sleep.

I finally was able to get in touch with all the doctors I've been trying to reach for the last 2 days. They all agree we need to see infectious diseases before we mess with her meds any more. So we have an appointment with ID next Tuesday. Hopefully things won't get any worse before then. We just pray that they'll be able to figure all of this out.

I just realized I never mentioned how her diarrhea is doing. It's still just as bad--up to her arm pits in the mornings. I guess after 9 weeks, and learning tricks to cleaning it up, it just doesn't seem like a big deal any more. It's crazy to think about what has become "normal" to us now!