Look Who's Up!

We met with PT and our medical supplier earlier today to get Annie in her wheelchair for the first time and make more adjustments to Annie's temporary seat back.  (A new one will have to be made since the new shape of her back will no longer fit in her old molded seat back). Together they transferred Annie to her chair and she was in it for about 5 minutes while they noted adjustments that had to be made.  She tolerated it really well and actually fell asleep.

Later this afternoon, our nurse helped me get Annie in her chair again.  The transition didn't go quite so smoothly this time.  Two-person lifts are harder than doing it alone, but since Annie is a whopping 76 lbs with all her fluid retention, there was no way I could comfortably lift her myself and be as gentle as I would need to be with her right now.  But once she was settled in her chair she did great and even tried playing with her beads just a little!  She stayed in her chair for 40 minutes! But was asleep for most of that time.  After we got her back in bed, she fell right back asleep from all the hard work! 

We're working to get her sitting up more so she can start to tolerate her chair.  She is disconnected from everything now except for her regular feeding pump she's always attached to, and the compression wraps on her legs.  Since removing the foley, she still is unable to void on her own, so we'll be straight cathing until she can void on her own.  No more BMs as we anticipated, so we're still working to get things up and running.

Not thrilled to be sitting up, but tolerating it well enough.  Doesn't she look so much straighter and taller?!