- 1 sick little girl in isolation
- 2 tired parents
- 97 days of c-diff
- 22 days in the hospital
- 1 sore tummy with colitis
- 4-8 episodes of diarrhea per day
- countless vomiting episodes
- 6 lbs lost
- 7 IVs blown
- 5 days waiting to get a central line
- 1 visit to the OR (to get subclavian line)
- 7 days to recover from dehydration
- 13 days without being fed (just TPN)
- 1-3 pokes per day for blood work
- 0 nurses able to draw blood from the subclavian line
- 3 chest x-rays
- 6 grand mal seizures
- several myoclonic seizures
- 15 doctors and residents (maybe more, I've lost count)
- countless nurses
- 4 nurses that are my favorites
- 4 straight caths for urine cultures
- 7 different drugs (in addition to the 4 she normally takes)
- 6 doses of oral gamma globulin
- 1 blood transfusion
- 1 CT scan
- 6 sponge baths
- 6 times a day venting Annie's tummy
- 103.0 degrees at highest temp
- 96.8 degrees at lowest temp
- 18 hours: longest stretch of time without diarrhea
- 4-5 interruptions per night
- 34 pages of notes to remember all the information we receive
- 3 escapes from the hospital room (for OR and radiology visits)
- 2 children at home craving their parents' attention
- 2 grandparents helping out
- 2-3 more weeks of anticipated hospital admission (at a minimum)
- countless cards, pictures, posters, balloons, and stuffed animals from classmates and friends
- 4 temples (to our knowledge) with Annie's name on the prayer roll
- countless church congregations, relatives, Aicardi family members, and friends praying and fasting for Annie
- 1 hero and celestial spirit who patiently endures and continues to teach us
Monday, November 8, 2010
Some Numbers...
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This is such a powerful post Jodi. Thank you for taking the time to write it. Annie is truly amazing.
ReplyDeleteI'm so sorry to hear everything she is going through. I wish there was something more I could do. My little sister is handicapped and I don't know what I would do if she were suffering this much. You are such an amazing mother and Annie is a trooper. I know Heavenly Father loves you all and is with you as you go through this trial. You will always be in our prayers and thoughts!
ReplyDeleteI'm sorry there isn't anything that anyone can do to help.
ReplyDeleteWhen we went to the temple again this week we put your families names in again. I really hope she makes progress soon.
Wow!! Those are some amazing numbers. She is sure a stong spirit to have to endure this trial and you and Justin are equally stong to travel down this hard road with her. She is lucky to have such wonderful parents are you guys. Wish we were closer to help with the other two. Glad that grandparents can help you out. We will keep her in our prayers- and you too.
ReplyDeleteGod Bless you all!
Audrey Cox