Monday Update: A Calmer Day!

Today has been pretty quiet! Annie had a pretty uneventful night. Her oxygen saturations dropped a couple times into the 50s, so she got oxygen for a short while. But she is doing pretty great today. Annie's white blood count has come down to 17, so we're finally starting to move in the right direction.

Annie's seizures have been less frequent, which is great. But her electrolytes and other lab values are not where they should be quite yet, so she'll get her TPN adjusted again tonight. We hope that her labs will improve once she's able to get back on her regular formula feedings and supplements. This morning we resumed most of her regular daily meds, giving them through her J-tube, so hopefully some of those supplements will help some of her lab values improve.

Annie is getting pedialyte now at 10cc/hr through the J-tube and seems to be tolerating it well. That rate will gradually be increased and then we'll need to decide how to progress. We might try formula through the J-tube slowly first, or we'll start trying to give her pedialyte through the G-tube at a really slow rate and work up eventually to formula. We really hope to have her not dependent on the J-tube, but it might take some time to make that transition.



This is how Annie spent most of her Labor Day today.... Lexie is so kind to keep her entertained!

It's amazing what a good hair-brushing can do!