September 17th Update

Our weekend at home all together was pretty uneventful as we tried to recover from three weeks of exhaustion. But last night, Annie started vomiting again. She vomited consistently every hour throughout the whole night. We stopped her feeds but she continued to throw up until about 6am.

We already had a follow-up scheduled with her pediatrician today, so that was helpful. Last night I was looking through all the radiology reports from Annie's hospital stay and noticed some findings regarding Annie's pancreas (a pseudocyst or hypodense lesion, and some other pancreatic issues), as well as nodules that were found in her upper left lung. No one mentioned any of these findings to us while in the hospital, so I asked our pediatrician to read through the reports. He agreed that we need to look into these issues further. He believes a pancreatic pseudocyst would definitely cause vomiting, as would mucous from a lung infection.

So Annie and I headed back to the Children's hospital and had a chest x-ray done, as well as blood work to check various things such as her white blood count, hemoglobin, level of her blood thinner, electrolytes, and pancreatic function. We were scheduled for blood work tomorrow with the hematologist, but we were able to get his labs drawn today also, which will save us some time when we meet with him tomorrow.

Annie was already scheduled tomorrow for her annual, routine renal sonogram and dexa bone density scan, so our pediatrician ordered extra imaging of her pancreas as well.


So while it's been wonderful to have Annie home with us, we still have some unanswered questions and issues. We're really praying we can get her the help and treatment she needs without having to stay in the hospital again. We really appreciate continued prayers for her and our family.