September 14th: She's Home!

We were joyfully surprised last night to have Annie finally discharged from the hospital. That was a long and stressful 19 day stay. We didn't expect her to be discharged quite so soon because she had evidence of internal bleeding yesterday morning, but her labs late yesterday afternoon had improved, indicating that the bleeding must have resolved itself. Since we found some clotted blood in her stomach, we suspect she was bleeding from having the J-tube all twisted up in her stomach and causing irritation.

Once the doctors saw that Annie's hemoglobin had recovered from 8.1 yesterday morning to 9.0 late yesterday afternoon, they said there was really no reason to keep her in the hospital. She is not recovered yet from all the issues she's facing, but we no longer need to be inpatient to monitor and treat her.

Annie needs to receive injections twice daily for the next 3-6 months to treat her blood clot. We'll have several appointments over that time for the hematologists to monitor that blood clot with sonogram until we know it is gone.

Annie's lab work is still not normal, with very low hemoglobin and high white blood count, so we will continue to monitor that with regular lab work as well. Annie's high heart rates have been a little lower lately, but still not normal, and her body temperature continues to drop at night lower than it should. So we will be monitoring all these things from home and taking her to several doctor appointments over the next few weeks and months.

So even though Annie is still not back to her normal self, it is a huge blessing to have her back at home with us while we continue to treat her. Thank you so much for all your prayers and well wishes!