Tuesday, October 1, 2019

A Better Day

Annie had a little bit better day today. Her seizures have decreased dramatically, thankfully. She is still having very mild seizures occasionally where she is clenching and then twitching her fist, but that is a huge improvement over the more dramatic and frequent seizures we've seen this past week.  We aren't sure if her Sabril has finally caught up and is working again, or if it's the Dilantin that has brought about this improvement. We'll find out in a week or two when we start weaning her off the Dilantin.

For the last couple days Annie has been having quite a bit of irritability and agitation. We aren't sure if it is due to pain, disruption of her routine and regular sleep schedule, withdrawal from not having as much Ativan lately, or a side effect of the Dilantin. We are trying to keep her off the Ativan so she can get more restorative sleep and get back into her regular routines which will hopefully help.

Tomorrow is Annie's last day on antibiotics for her UTI, which will be nice. Her antibiotic has it's own negative GI side effects so we're glad to almost be done with that. Overall, I think Annie is starting to improve, but the true test will be when we wean her off the Dilantin. We may have to start experimenting all over with another anticonvulsant to add, but we really pray that her Sabril alone will be sufficient.

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