Fewer Seizures, More Vomiting

I feel a bit like a broken record with my posts lately. But several people have been asking about Annie, so I thought I better post an update, even though I don't have much new to report.

Annie is only having maybe one seizure a day that we are noticing. We're very happy with her level of seizure control right now. That may change as we wean her off the phenytoin in a week or so.

Annie had a pretty great day yesterday and went a full 24 hours without vomiting, so I thought she was over that. However, overnight last night, Annie started throwing up again. She is definitely congested, so we're trying some Robitussin to help with her secretions and congestion, but so far, I'm not sure it's helping much.

Congestion is really hard for Annie to deal with since she can't blow her nose, so we're using our suction machine regularly to try to keep her comfortable. I'm still not sure if the vomiting is related to the congestion or not. Her vomiting seems less frequent during the day while she's upright in her chair, so maybe her cold really is to blame.

Due to her vomiting, Annie isn't voiding normally, so I had to cancel her bladder scan study that was supposed to be this Monday. There's no reason for us to spend all day doing the study on a day when she's not her normal self. I want the study to be as accurate as possible and be representative of her at her healthiest. It's not an urgent test anyway. We're really just hoping that Annie is well enough by Wednesday to move forward with her brain MRI. Since it's under sedation, she can't be vomiting.

It actually worked out well for me to cancel Annie's all-day appointment on Monday because this morning our furnace broke. We just had it repaired six months ago, so we're surprised to have more problems with it already. A repairman is able to come on Monday, so it works out well for me to actually be home that day instead of being at the hospital all day as previously planned. Fortunately, our temperatures aren't too very cold this weekend. We only turned on our furnace yesterday for the first time this season, mostly just to stay warm overnight. We have some awesome gas fireplaces that put out a ton of heat, and an extra blanket at night should be sufficient.

This weekend is the worldwide General Conference for our church, The Church of Jesus Christ of Latter-day Saints. I'm always excited for conference, but this time I am looking forward to it even more. I think our family really needs this weekend full of uplifting and inspiring messages from the prophet, apostles, and other church leaders. I hope it is a weekend of increased faith, peace, hope, and coziness.