Slight Change of Plans

Due to the rash that Annie has developed, our neurologist has instructed us to immediately stop the phenytoin. It's usually best to do a slow wean over a couple weeks, but our wean took place over 36 hours! This does put Annie at an increased risk of more seizures, so we'll need to keep an extra eye on her the next few days.

We've had to reschedule Annie's IEP yet again, due to this change. We won't be able to send Annie back to school until we make sure her seizures are stable. We do plan to have her IEP on Wednesday now, whether she returns to school sometime this week or not.

Annie has been feeling a bit better today with less congestion and not as much need for suction. So things in that area seem to be improving.