One Sleepy Girl

After suddenly stopping the phenytoin on Monday, Annie did have one day of increased seizures, and long seizures, but she now seems to be back to her baseline as far as the seizures go. She is back to having her regular spasms and startle seizures. If only Molly wouldn't sneeze so often and abruptly!

The big change the last couple days has been Annie's sleepiness. The last two mornings, Annie has slept in until 11:30am, which is not like her! I haven't dared wake her up because I don't want to trigger seizures, and I figure her body must need the sleep. Once she wakes up, she's still a little tired it seems, and she's not quite as active with her toys or as vocal as normal. We wonder if this is still a side effect of coming off the phenytoin so suddenly.

Annie is still drooling like crazy and has a lot of thick phlegm that is requiring more suction than normal. We are hoping its just from the tail end of her cold. We had her IEP meeting at the school on Wednesday, and are looking forward to transitioning her back to school, but I'm not sure how they will keep her dry! Her seizures seem stable enough for her to return to school, but I also don't know how she will tolerate getting up at 6:00am when she's been sleeping in until 11:30 each morning. We are going to try to get her back on a more normal sleep schedule the next few days with the hopes she can return to school on Monday, even if she goes late. She won't have full days of school next Tuesday or Wednesday anyway due to more appointments at the hospital. So hopefully we can do a nice easy transition to school next week.